Battling for James

ONE JOURNEY AT A TIME

Meet James and Learn About Batten Disease

  • James is a vibrant, sweet, fun, loving boy who is always happy and loves to give hugs.

  • Reading, playing outside, riding the ATV with his daddy, watching garbage trucks, and being adventurous.

  • It’s a neurodegenerative, genetic, terminal disease causing developmental milestones to be missed, loss of motor functions, and seizures.

    Please read more about Batten Disease here.

  • There is no cure. However, there is an enzyme replacement therapy called Cerliponase alfa (Brineura) to help slow the progress of the disease.

    Here is more information on the ERT (Brineura).

  • Follow James and family on their journey of Battling Batten for James.