Battle for James
ONE JOURNEY AT A TIME
CLN2 is a rare genetic disease and is terminal. It is part of a group of disorders known as NCLs (neuronal ceroid lipofuscinoses). We are in the fight of our lives, to save this little one. So join us as we navigate these difficulties and work to find a cure!
GALLERY
A gallery of James pictures for all to see!
JOURNAL
Follow James on his adventures!
RESOURCES
Learn more about CLN2.
Meet James!
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James is a vibrant, sweet, fun, loving boy who is always happy and loves to give hugs.
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Reading, playing outside, riding the ATV with his daddy, watching garbage trucks, and being adventurous.
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It’s a neurodegenerative, genetic, terminal disease causing developmental milestones to be missed, loss of motor functions, and seizures.
Please read more about Batten Disease here.
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There is no cure. However, there is an enzyme replacement therapy called Cerliponase alfa (Brineura) to help slow the progress of the disease.
Here is more information on the ERT (Brineura).
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Follow James and family on their journey of Battling Batten for James.